Posts filed under 'Self-Advocacy'

Band-Aides and Blackboards

Band-Aides and Blackboards: When Chronic Illness…or Some Other Medical Problem Goes to School This website is designed for kids, teens, and young adults growing up with medical problems. The site content is arranged by age groups. A wide range of disabilities including leukemia, cystic fibrosis, cerebral palsy, hearing impairments, panic attacks, limb amputation are included. There are many stories told from the perspective of kids with a disability and the challenges they have faced. Topics such as dealing with teasing, stories from a siblings perspective, tips for parents, teachers and doctors, and how to make the most of a stay in the hospital are covered. A book of pages designed and written by Joan Fleitas, Ed.D., R.N., Associate Professor of Nursing, Lehman College, Bronx, New York.

November 2nd, 2009

National Youth Leadership Network

National Youth Leadership Network- NYLN’s mission is to promote youth leadership and education.  We teach young people how to advocate.  Our goal is to make sure that young people with disabilities have the chance to set and reach their own goals.

November 2nd, 2009

Winners-On-Wheels

Winners-On-Wheels, or WOW, is a scouting type organization for kids ages 4-17 who use a wheelchair part time or full time. The focus of the meetings is on discovering and enhancing the abilities of each individual child.  When a child discovers he/she CAN make a difference, they dare to challenge their limitations and can achieve their dreams. WOW Oregon conducts activities at various locations around the state.

November 2nd, 2009

Youth Empowerment Alliance (YEA)

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Youth Empowerment Alliance (YEA)
– An online youth from the Maryland Developmental Disabilities Council leadership training program, “Take Control of Your Life,” is self-paced so that users can take as much time as they like, and can pick and choose modules. The program is designed to engage youth and young adults as emerging leaders as they transition from school to the adult world.

November 2nd, 2009

Victims of Crime With Disabilities Resource Guide

Victims of Crime With Disabilities Resource Guide This site supports a searchable database containing hundreds of resources focusing on victims of crime with disabilities.

November 2nd, 2009

UO-UCEDD – Abuse and Disability Publications

Abuse of children and adults with disabilities is a serious issue. People with disabilities are more likely to be abused than people without disabilities, and often these individuals are isolated and have difficulty getting help. There is little consumer accessible information on the web that helps people with disabilities understand the definition of abuse and the people who can help. In addition, abuse is often suspected first by friends, neighbors and co-workers. You may wonder what to do if someone comes to you and seeks advice. The information that follows is designed to help people with disabilities understand some basic definitions of abuse and some phone numbers you can call. In addition, there is more information on the listed websites.

Publications produced by programs at the University of Oregon, Center for Excellence in Developmental Disabilities:

What can I do about abuse of people with disabilities? A Users Guide

The Health and Disability Concerns of Survivors of Domestic Violence
by Deborah Olson and Debra Eisert

Family Violence Prevention Fund – National Health Resource Center on Domestic Violence Information on Violence Against Women With Disabilities

Adult Disability Abuse - Power Point Presentation

Recognizing Child Abuse – What You Can Do? Program Evaluation of a Case-Management Program For Survivors of Domestic Violence

November 2nd, 2009

DisabilityResources.org

DisabilityResources.org – This collection of links covers a broad range of disability and abuse topics.

November 2nd, 2009

Emergency Evacuation Preparedness

cdihp logo

Emergency Evacuation Preparedness: Taking Responsibility For Your Safety A Guide For People with Disabilities and Other Activity Limitations. The Center for Disability Issues and the Health Professions (CDIHP) at Western University of Health Sciences in Pomona, California, has producedd a 36-page guide to help people with disabilities better prepared for large or small-scale emergencies. The guide’s focus helps people with disabilities take responsibility for their own safety during emergencies and evacuations and work effectively with first responders. Print the guide in pdf. from the link above. Email: evac@westernu.edu

November 2nd, 2009

People First of Oregon

People First of Oregon People First is a self-advocacy organization of developmentally disabled people who have joined together to learn how to speak for themselves. The organization offers support, a united voice and advocacy to its members.

November 2nd, 2009

Lane Independent Living Alliance

Lane Independent Living Alliance The Lane Independent Living Alliance (LILA) is a consumer-controlled organization serving persons with a range of disabilities in Lane County, Oregon. Our mission is to enhance options which maximize independent living.

November 2nd, 2009

Oregon State Rehabilitation Council (SRC)

The Oregon State Rehabilitation Council (SRC) ) is a group of consumers, advocates, business and community representatives, appointed by Oregon’s Governor to advise the Department of Human Services’ (DHS’) Office of Vocational Rehabilitation Services (OVRS, formerly VRD) in the development, implementation and review of rehabilitation service delivery for Oregonians with disabilities. Their website includes links to other governmental offices and links to community resources.

November 2nd, 2009

Oregon State Independent Living Council

Oregon State Independent Living Council promotes choice, equal access, and full inclusion of people with disabilities throughout the State of Oregon. their website is packed with information, reports, contacts and links to resources.

November 2nd, 2009

Learning Disability Self-Advocacy Manual

Becoming an Effective Self-Advocate is a chapter from the Learning Disability Self-Advocacy Manual, and iis geared toward transition age students with learning disabilities. Included are a glossary of terms, ‘Ten steps to becoming an effective self-advocate’, and tips for students for meeting with their teacher to negotiate accommodations.

The chapter Planning for Your Future is also geared toward transition age students with learning disabilities. Planning for high school, after high school, and a career are the main topics addressed

November 2nd, 2009

Coglink

Coglink is a personalized, simple-to-use, safe email program that comes with automated training and unlimited access to friendly Help Desk staff for questions and troubleshooting. The program is simple and easy to use, even for those who have found other systems too challenging.

November 2nd, 2009

Full Access Brokerage

Full Access Brokerage envisions a world where equal access ensures that all people live, work, and recreate in their community, consistent with their preferences and choices. This is a world where partnerships thrive and support is a natural extension of community membership. In the Full Access Brokerage vision, dreams are pursued through active community participation, choices, and advocacy. Contact information for their offices in Eugene, Cottage Grove, Bend and Madras, Oregon, is available on their website.

November 2nd, 2009

Kids as Self Advocates

Kids as Self Advocates (KASA) is a national, grassroots project created by youth with disabilities for youth. We are teens and young adults with disabilities speaking out. KASA knows youth can make choices and advocate for themselves if they have the information and support they need.

November 2nd, 2009

Transition: School to Work

Transition: School to Work Self-awareness (self-knowledge) is critical for the student in determining the direction that transition planning will take. This website explains the concept of self-advocacy, identifies strategies for teaching students to be self advocates, and illustrates the application of these concepts in the IEP process and transition planning.

November 2nd, 2009

The Involvement of Students in Their Special Education Mediations

The Involvement of Students in Their Special Education Mediations identifies some of the benefits and challenges that warrant consideration by families, educators, and dispute resolution practitioners as they create opportunities for students to participate in the mediation process.

November 2nd, 2009

Promising Approaches in Planning for Transition

Promising Approaches in Planning for Transition This article discusses the skills students need to participate in planning an IEP, teaching those needed skills, considerations for teachers, recommendations, and improving results for students with behavioral disorders.

November 2nd, 2009

Self-Advocacy for College Students

Self-Advocacy for College Students This website is geared toward college students with learning disabilities. Four common myths are highlighted with responses describing suggested practices and tips for addressing these concerns. The myths cover such topics as the label of “learning disabled”, meeting students needs, grades and parental involvement.

November 2nd, 2009

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