This resource page addresses one aspect of development that’s important not to ignore with children with or without disabilities—the development of sexuality. There’s so much to know and consider on this subject–what sexuality is, its meaning in adolescent and adult life, and the responsibilities that go along with exploring and experiencing one’s own sexuality. Children need information about values, morals, and the subtleties of friendship, dating, love, and intimacy. They also need to know how to protect themselves against unwanted pregnancies, sexually transmitted diseases, and sexual exploitation. This is especially true when the young person has a disability.
Health & Relationships
Oregon Office on Disability and Health(OODH) prevents secondary conditions in Oregonians with disabilities, improves access to public health programs, and implements effective health promotion and wellness programs for Oregonians with disabilities. Our goal is to improve the health and quality of life among Oregonians with disabilities.
OCCYSHN promotes optimal health, development and well-being of Oregon’s children and youth with special health needs.
People with disabilities can and do live healthy lives. Like most people, many individuals with disabilities can benefit from increasing their knowledge and skills about how to lead a healthy lifestyle. Since 2001, an innovative and fun program called Healthy Lifestyles for People with Disabilities has provided people with disabilities with the knowledge, skills and resources to create a healthy lifestyle.
The Healthy Lifestyle workshop is an evidence-based curriculum and takes a holistic approach to health:
- Explore the meaning of wellness
- Set wellness goals
- Learn from peers and make new friends
- Experience yoga, low-impact exercise and massage
- Benefit from on-going support for up to 6 months upon completing the workshop
This web page provides information for people with disabilities about healthy living, safety, school, transitions, independent living, and finding support.
A coalition dedicated to decreasing health disparities among women with disabilities by improving access to health promotion services and quality of care.
Aging and Disability Resource Connection – a resource directory for Oregon families, caregivers and consumers seeking information about long-term supports and services. Here you will find quick and easy access to resources in your community.
More than 36 million Americans have a disability. Improving the health of this large segment of the population is a central concern for public health. This chartbook presents information about the health of adults with disabilities in Oregon. The information in this book can be used by people with disabilities, their family members, policy makers, health professionals, disability service providers, and others interested in the health and well-being of people with disabilities.
GirlsHealth.Gov Illness and Disability Section – Many different kinds of illnesses and disabilities can affect people. If you have an illness or disability, you know that taking care of your needs can be hard sometimes. But you can learn about the skills and support you will need to live well with a disability or chronic illness. This section of girlshealth.gov offers lots of helpful tips on everything from school, to making friends, dealing with health appoints and more! Girlshealth.gov was created in 2002 by the U.S. Department of Health and Human Services’ (HHS) Office on Women’s Health (OWH) to help girls (ages 10 to 16) learn about health, growing up, and issues they may face. Girlshealth.gov promotes healthy and positive behaviors in girls, giving them reliable and useful health information in a fun, easy-to-understand way. The website also provides information to parents and educators to help them teach girls about healthy living.
The mission of American Association on Health and Disability(AAHD) is to contribute to national, state, and local efforts to prevent additional health complications in people with disabilities, and to identify effective intervention strategies to reduce the incidence of secondary conditions and the health disparities between people with disabilities and the general population. AAHD accomplishes its mission through research, education and advocacy.
The Disabled World category of disability health conditions provides information on health and support for persons with disabilities, including services, assessments, costs, and mental health, including male and female health issues and diseases.
Disabled World aims to provide information to support disability health promotion and wellness initiatives for people with disabilities around the world by providing information that covers a wide range of disabilities, from cancer to sleep disorders.
Our disability health area examines some of the inter-relationships among components of disability, health conditions and other related factors including delivering real improvements for disabled people as users and providers of health and social care services and the wider disabled community
We also explore the relationship between severity of disability, health conditions, personal, and environmental factors, and seek to enhance health professions education, and to improve access for people with disabilities to health, health education and health care services.
People’s health is increasingly conceptualized in terms of their quality of life, what activities they can do, in what areas of life they are able to participate as they wish, and what long-term supports they need for living in the community.
Do you know, or are you, a kid who:
- has difficulty moving around?
- has difficulty seeing?
- has difficulty speaking or getting people to understand what you need?
- finds it hard to keep up in school or do homework?
- has a medical condition like Down Syndrome or spina bifida?
If you know a kid who has these difficulties or if you have them yourself, then you may know or be a kid with a disability. Kids who have disabilities may not have the same opportunities as other kids. They may feel lonely or different and may not have a lot of fun. Sometimes, because kids look or act differently, we avoid them or don’t include them in the same activities we do. Can these kids play sports or participate in the same activities as other kids? Do they need special equipment to play? Do they need to go to special schools or ride special buses? Will these kids grow up to be newspaper reporters, doctors, lawyers, athletes, or actors? If you don’t have a disability now, can you become disabled? How does it feel to be disabled? The answers to these questions will be our Quest.
Through our Web Quest we will become “virtual investigators.” We will search for information by exploring not only the Internet but also our own school and neighborhood.
Breast cancer is the most common cancer in women. And living with a disability does not make you immune. Know the facts about breast cancer and why you need to make screening a regular part of your health care.
If you are 40–49 years old, talk to your doctor about getting a mammogram. If you are 50 or older, be sure to get a mammogram every two years.”
(Source: CDC’s Breast Cancer Screening Recommendations)
The RRTCADD’s Facts for Healthy Aging educates adults with disabilities about health conditions and impairments that typically occur in later life. Each fact sheet provides a concise and understandable explanation of the cause, symptoms and treatments of a specific health condition. These fact sheets were adapted from the “Age Pages” series for the general population developed by the National Institute on Aging. Currently available fact sheets are:
- Foot Care
- High Blood Pressure
“What can be done today to support people with intellectual and developmental disabilities who are aging?” That’s the focus of this issue of Impact. The articles in these pages give a variety of responses to the question. From self-advocates we hear of the importance of having opportunities to be active participants in their communities, to be listened to as they speak up for themselves, and to continue to pursue their own goals and dreams for their lives. From siblings we hear about the necessity to respond to the concerns that keep them awake at night as they deal with the aging of all their family members, including parents who may have been primary caregivers for their brothers or sisters with disabilities. From researchers we hear of the policy and service issues that need to be addressed as the number of adults with intellectual and developmental disabilities over 60 years of age is projected to grow to 1.2 million in the next 20 years. And we hear from practitioners as they describe some of the promising approaches to ensuring quality service and supports that address the physical, social, emotional, and spiritual dimensions of aging with intellectual and developmental disabilities. Our hope is that readers of this issue will find some fresh perspectives and information that will be useful to them as they journey with the aging adults with disabilities who are in their lives.
Discover why yoga has become such a popular practice for kids with disabilities and resources for getting started.
Increasing numbers of students with autism spectrum disorder (ASD) are being included in general education settings. Learners with ASD can benefit from the general education curriculum, with some achieving at a high academic level.Yet, social communication and behavioral difficulties can present challenges to their successful inclusion. Instructional priorities for children with ASD include social communication interventions that teach children how to spontaneously initiate functional communication in academic and social contexts. This article describes evidence-based strategies that will help educators create opportunities for social interaction for students with ASD in the context of naturally occurring classroom activities and routines.
The benefits of a 92 degree warm water therapeutic pool include increased joint mobility, muscle flexibility, improvement in endurance, increased muscle strength and tone, improvement in circulation and respiration, a decrease in pain and a general feeling of wellness.We are a renewable energy conscious facility, utilizing salt-water generation and supplementing our heating with one of The largest Thermal Ray Solar Systems in the Northwest.Tamarack Wellness Centeris a non-profit which offers both contemporary and traditional approaches to the wellness of all ages and abilities. Tamarack provides rehabilitation programs, therapeutic interventions, wellness and preventative care with a unique focus on sustainable practices and placing community at the center of health and well-being.
This is a training program developed at WIHD in collaboration with the Self-Advocacy Association of New York State (SANYS). Its purpose is to help individuals with developmental disabilities make healthy choices in daily life and speak up for good health. The seminar consists of eight sessions. Topics included are developing a health plan, self-advocating at the doctor’s office, physical activity, nutrition, safety and cleanliness in the home, hygiene, and emotional health. During each session participants receive information, learn the material through discussion, activities, and visual aids, and develop goals. Collaboration with community resources, professionals, and agencies provide additional content and expertise to the seminar. The program includes three health tools: My Medical Appointment , a form to help prepare for medical appointments; Health Information Form , a record of a person’s health needs and medical history; and My Health Plan, a listing of goals developed during the seminar.
Being a Healthy Adult: How to Advocate for Your Health and Health Care
This was written to help young adults with disabilities learn how to become effective self-advocates for their own health and health care. This guide will also be very helpful for adults with disabilities of all ages who want to take a more active role in advocating for their health care. The guide includes activities, worksheets, and tips for communicating with health care providers, keeping track of personal health information, and figuring out what supports will assist each individual with making the health-related choices that are right for him or her.
Band-Aides and Blackboards: When Chronic Illness…or Some Other Medical Problem Goes to School This website is designed for kids, teens, and young adults growing up with medical problems. The site content is arranged by age groups. A wide range of disabilities including leukemia, cystic fibrosis, cerebral palsy, hearing impairments, panic attacks, limb amputation are included. There are many stories told from the perspective of kids with a disability and the challenges they have faced. Topics such as dealing with teasing, stories from a siblings perspective, tips for parents, teachers and doctors, and how to make the most of a stay in the hospital are covered. A book of pages designed and written by Joan Fleitas, Ed.D., R.N., Associate Professor of Nursing, Lehman College, Bronx, New York.
Medifecta Healthcare Training, formerly Healing Arts Communications, a leading provider of caregiver programs, offers 18 hours of high-quality, standardized educational materials suitable for training family, volunteer, respite, private duty, and staff caregivers.
National Alliance for the Mentally Ill in Oregon Education, support, and advocacy for people with mental illness, their families and their allies, in Oregon. Free site registration allows visitors to participate in discussion groups. Most NAMI activities are free of charge. You do not need to be a member to participate.
Shriners Hospitals for Children, in Portland Oregon, is a 40-bed pediatric hospital, research and teaching center providing comprehensive medical, surgical and rehabilitative care to children with orthopedic conditions. Children up to age 18 are eligible for care at Shriners Hospitals for Children if, in the opinion of our physicians, there is a reasonable possibility they can benefit from the specialized services available. Acceptance is based solely on a child’s medical needs. A family’s income or insurance status are not criteria for a child’s acceptance as a patient.
Easter Seals Oregon – Children’s Therapy Center in Salem, Oregon, provides a full range of therapy services to children from birth to age 18, including physical therapy, occupational therapy, speech/language therapy and mental health services. Visit the website to learn more about the services they offer.
Providence Child Center, in Portland Oregon, provides a rich continuum of services for children, and is home to the a pediatric skilled nursing facility; Center for Medically Fragile Children, Providence Neurodevelopmental Center for Children, comprehensive neurodevelopmental evaluation and therapy services; and the Jean Baton Swindells Resource Center for Children and Families, providing education and information to families, caregivers and friends of children with special needs. In addition, Providence Child Center encompasses the Providence Montessori School and Wee Care child development center.
Oregon Family Support Network is a private non-profit resource for Oregon families with children and adolescents with emotional, behavioral, mental and/or physical challenges and special needs. Locate your local program from the interactive map.
Oregon Early Hearing Detection and Intervention
Visit this site for information about newborn hearing screening, resources for families, and links to screening facilities. The Oregon Resource Guide for Families of Children with Hearing Loss http://www.oregon.gov/DHS/ph/ch/hearing/docs/EHDIguide.pdf is another valuable resource.
Babies First! Program is Oregon’s public health nurse home visiting program for children at risk for poor health and development outcomes. The objective of Babies First! is to identify children who have conditions associated with poor health outcomes, and then to improve the health outcomes of these vulnerable children through prevention and early identification of problems. Find your local program office and other helpful resources for both families and practitioners on this site.
The National Association for the Dually Diagnosed (NADD) is a national association for persons with developmental disabilities and mental health needs. NADD provides professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. This website provides a conference calendar, educational products, online discussions and resource links.