Written by siblings, this booklet is meant to help parents explain Autism to the siblings of children with Autism.
A fabulous brochure for adults with Autism who are transitioning into their own home. “Moving out of the family home is one of the biggest milestones in a person’s life. For those with autism spectrum disorders (ASDs), this can be a long and challenging process. Coordinating choices for the physical home as well as the necessary support services can be complicated, leaving families unsure of where to start…”
For children between the ages of birth and 6 years…
Parents or caregivers can use the ASQ questionnaires to check a child’s general development. The results help determine if a child’s development is on schedule.
Empower Parents of Children With Autism. “A study based on a review of clinical data on 535 children with autism who had no significant speech by the time they turned 4. Majority of youngsters with autism who have severe language delay do eventually learn to talk, researchers say.”
Dr. Eric Fombonne, Canada Research Chair in child psychiatry at McGill University in Montreal, has spent the past 20 years analyzing the prevalence of autism. He explains that big differences among different states and among children of different ethnicities, driven by the challenge of identifying all children with autism, are likely to be major contributors to the apparent increase in autism rates around the country.
Some helpful information from the Autism Society on Supports and Resources in Oregon for parents of children with autism.
Do you have a child with autism? With a younger sibling 6 to 18 months old?
Interested in participating in a study to help autism research? In Eugene, OR?
Research Study Eugene CDRC Infant Toddler Assessment Clinic
Check Your Child’s Early Development?
Online checklist for children ages birth up to 6 yrs.
Free, Confidential, Easy
Interactive site that parents/primary caregivers/childcare providers can use to check and monitor a child’s early development.
Complete one or two easy questionnaires and receive copies of the questionnaire(s), results, recommendations for next steps and play & learning activities. Parent-learning links to popular non profit sites, resources for families and all Oregon Early Intervention-Early Childhood Special Education contacts are also listed.
Oregon Program Autism Training Sites and Support offers Parent and professional training, research, and resources.
Autism Now is a central point of quality resources for individuals with Autism Spectrum Disorders (ASD) and other developmental disorders.
Autism acceptance in early childhood. What Is The Role of Early Care and Education Providers?
Guide to Self Advocacy, “The key is to make yourself heard however you can”… Autistic Self Advocacy Network
Autism Research: onset of autism in an investigation that follows high-risk infants from birth through age 3. Dr. Ozonoff’s research at the UC Davis MIND Institute focuses on very young children with autism. She is also a featured speaker at a free presentation on Autism, June 20 at University of Oregon.
Dr. Eric Fombonne is Director, Autism Research Center, OHSU Brain Institute; Professor, OHSU Department of Psychiatry, Portland, Oregon OHSU Doernbecher Children’s Hospital.
For parents of newly diagnosed children with disabilities it can be very difficult but these resources can help you learn your rights as a parent as well as your child’s rights and give you a place to start looking for family support. You are not alone!
A federal advisory board adjusts the classifications of Autism Spectrum Disorder.
For people on the Autism Spectrum, job interviews can be very challenging. But with virtual training the stress and uncertainty can be reduced and perhaps overcome all together. Check out this free online interview simulation and get valid feedback and experience for your next interview!
Resource from the Office of Early Childhood Development with information on Autism Spectrum Disorder (ASD) and links to other resources.
The Take a Break on ASO program, provided by the Autism Society, helps to give the parents of children (and adults) with autism a break to get their bearings straight. They provide the parents with services that allow the parent to take a little time for themselves and still be sure their child is being taken care of.
The CDC’s site on Autism, including new studies, free reading material,. statistics and information on screenings to help identify Autism in children as early as possible.
Poet & author, Faith Jegede, talks about her autistic brothers and the importance of being different.
Watch the video of her speech on TEDTalks
Early Childhood CARES offers many parent trainings and fun family events throughout the school year. Some of the events include; sign language workshops, behavior management trainings, and autism support groups. Please visit the calendar by CLICKING HERE or going to http://earlychildhoodcares.uoregon.edu/trainings-and-events/
Autistic Globetrotting is a website dedicated to providing travel information to people with autism, or the parents of autistic children. The website covers many different topics including hotels, ethnic dining, shopping, cruise ships, and even an article with tips for taking an autistic child through airport security.
Looking for a sensory friendly theater of film showing? Use these resources to find sensory friendly experiences in your area.
In partnership with The Autism Society, we bring AMC Sensory Friendly Films to families affected by autism on a monthly basis to select communities.
The program provides a special opportunity for families to enjoy their favorite films in a safe and accepting environment. The auditoriums dedicated to the program have their lights up, the sound turned down and audience members are invited to get up and dance, walk, shout or sing!
A collection of resources and information on Autism related research.
The Organization for Autism Research (OAR) was created in December 2001–the product of the shared vision and unique life experiences of OAR’s seven founders. Led by these parents and grandparents of children and adults on the autism spectrum, OAR set out to use applied science to answer questions that parents, families, individuals with autism, teachers and caregivers confront daily. No other autism organization has this singular focus.
Interactive Autism Network (IAN)
The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people nationwide affected by autism spectrum disorders (ASD) and hundreds of researchers in a search for answers. Individuals with an ASD and their families can share information in a secure setting to become part of the largest online autism research efforts in the United States. The data collected by IAN both facilitates scientific research and empowers autism community leaders to advocate for improved services and resources. In addition, anyone impacted by an ASD can become part of IAN’s online community to stay informed about autism research and make their voices heard.
Autism Spectrum Disorders Outcome Study & Training Project
The Autism Spectrum Disorders Outcome Study and Training Project is a collaborative project between Portland State University and the Oregon Department of Education. This website includes the outcomes of the two cohorts studied in 1998 and 2001.
2009 IACC Summary of Advances in Autism Spectrum Disorder Research
The Interagency Autism Coordinating Committee and Office of Autism Research Coordination are pleased to announce that the 2009 IACC Summary of Advances in Autism Spectrum Disorder Research was released and posted to the IACC website today in conjunction with the United Nations designated “World Autism Awareness Day” and the Department of Health and Human Services celebration of “National Autism Awareness Month.” The 2009 IACC Summary of Advances is a collection of brief summaries of the twenty research articles that the IACC felt made the most significant contributions to autism biomedical and services research in 2009.Please visit the pages below for more information.
Early Autism Research and Learning in Young children (EARLY)
The Mission of Early Autism Research and Learning in Young children (EARLY) is to improve the quality of life for young children with Autism Spectrum Disorders and their families. The institute is a new collaboration between the centers and institutes of the UCEDD. The primary goals of the institute are to provide evidence based training, service, and research for students, families and the larger community.
Effects of Weighted Vests on the Engagement of Children With Developmental Delays and Autism
The use of weighted vests for children with autism spectrum disorders and developmental disabilities is a common practice as part of sensory integration therapy programs. The purpose of the current investigation was to extend the research on the use of weighted vests for children with autism and developmental delays in a methodologically rigorous study. The study was conducted using an alternating treatment design. This allowed the comparison of three different conditions: weighted vest, vest with no weight (which served as a placebo), and no vest (which served as a baseline). The results showed no differentiation in engagement between conditions for any of the participants. Implications for practice and future research are provided.
Brief Report: Effects of Pressure Vest Usage on Engagement and Problem Behaviors of a Young Child with Developmental Delays
Brian Reichow, Erin E. Barton, Leslie Good, Mark Wolery
The purpose of this study was to examine the effects of wearing a pressure vest for a young boy with developmental delays. An A-B-A withdrawal design was used to examine the relation between wearing the pressure vest and child behaviors during a preschool art activity. Although the data showed moderate variability, no systematic differences were found in child engagement when the vest was worn and when the vest was not worn and problem behavior increased when the vest was being worn. These results are discussed in the context of the study limitations. Implications for future research are provided.
Association for Science in Autism Treatment
Association for Science in Autism Treatment mission is to educate parents, professionals, and consumers by disseminating accurate, scientifically-sound information about autism and its treatment and by combating inaccurate or unsubstantiated information. In doing so, we promote the use of effective, science-based treatments for all people with autism, regardless of age, severity of condition, income or place of residence.
A collection of resources on Autism and the Transition process from k-12, to post-secondary education, work, and community life commonly referred to as transition.
The Autism Speaks Transition Tool Kit was created to serve as a guide to assist families on the journey from adolescence to adulthood. Family members of adolescents and young adults with autism between the ages of 14 and 22 may request a complimentary hard copy of the Transition Tool Kit by filling out the Transition Tool Kit order form. For professionals, service providers, and family members of individuals with autism outside the ages of 14 and 22, we encourage you to download the kit free of charge.
Autistic Kids Learn To Survive, And Thrive, In College.
April 13, 2011 KUNCFor students living with Asperger’s syndrome, a high-functioning form of autism, the everyday social interactions of college life can be awkward. So as more kids with autism head off to college, there’s a growing demand for college services to help students fit in, graduate and ultimately find jobs.
Transition to Employment and Independent Living for Individuals with Autism and Aspergers By Temple Grandin
Temple shares how she got where she is today through a descriptive time-line beginning when she was 13 years old.
Life Journey through Autism Series: A Guide for Transition to Adulthood (Guía para la Transición a la Edad Adulta)
In this, the fourth volume in the OAR Life Journey Through Autism series, we provide an overview of the Transition-to-Adulthood process, with an emphasis on:
- The importance of early planning beginning no later than age 16 years and, at times, as early as age 14 years (or younger).
- The importance of collaboration between the transitioning individual, their family and friends, interested community members, the schools’ professional staff, and representatives from adult service systerms in the transition to adulthood process.
- The importance of community-based instruction in the development of skills associated with a more independent adulthood.
- The fact that individualized, effective transition planning is effortful and time consuming but, when done well, a fulfilling life as an adult is possible.
New York Times- Autistic and Seeking a Place in an Adult World
In-depth, front page article/video covering a year with Justin Canha, a young man with autism who is part of an new transition program to ready him for an independent life as an adult.
A collection of resources on people on the autism spectrum working and supporting work as a way of life for people living on the autism spectrum.
Adult Autism & Employment: A Guide for Vocational Rehabilitation Professionals
A guide for vocational rehabilitation professionals, including a synthesis of existing literature, promising practices, and previously unpublished insights and suggestions from a national expert on autism & employment.
Jobs4Autism.com is a resource of job success and job failure stories for individuals with autism, their family members, job coaches and caregivers. It allows everyone to share job ideas and help find long-term employment opportunities for those with autism.Anyone who has an autism job-related experience (good or bad) is invited to share it with others on the Jobs4Autism.com site.
JobTIPS is a free program designed to help individuals with communication, socialization, and learning differences explore career interests, seek and obtain employment, and successfully maintain employment. Individuals with an autism spectrum disorder (ASD) may find this site particularly helpful, as would individuals with learning differences, ADD, speech or language disorders, and other areas of exceptionality. JobTIPS addresses the social and communication differences that might make identifying, obtaining, and keeping a job more difficult for you.
JobTIPS is designed for direct use by individuals with ASD and other learning differences. However, this program (including all of the printables, assessments, and videos) is also suitable for delivery by educators, family members, clinicians, mentors, and job coaches.
Neurodiversity.com Autism & Employment Section
In-depth list of books, articles, and websites focused on Employment and Autism.
Adult Employment: Strangers in a strange land
Article from IAN detailing the state of Adults with Autism and Employment.
Autism Now. org On the Job
Gather information and resources about living with autism on the job.
Autism Works National Conference: A National Conference on Autism and Employment
Find information on this year’s conference as well as handouts, articles, videos and more from previous conferences.
Video “Autism and Employment” – An “Autism in the Workplace – Job Success!” Update
News Stories on Autism & Employment
NPR- Students With Autism Learn How To Succeed At Work by JON HAMILTON
People with autism often have a hard time finding and keeping jobs, so more schools are creating programs to help students with autism get prepared for the workplace. One of those programs helped change the life of Kevin Sargeant.
Search nationwide autism-related services and supports by location or service type. The Autism SourceTM Resource Database, created in 2004, is the most comprehensive database of its kind. The Autism Society strives to offer only credible and reliable resources to our constituents, therefore we have employed our nationwide network of chapters and collaborated with other autism organizations and professionals throughout the U.S. It is because of these collaborative relationships that the Resource Database continues to grow and is kept current with comprehensive resource listings.
Neurodiversity’s resource pages index material from a vast number of websites on autism, reflecting a wide range of information and perspectives. Visitors will also find links to many one-off articles with interesting and innovative content that you only find if you do deep searches. I seek to use my skills as a librarian and web developer to “case the place,” to draw attention to what I feel is some of the most substantive material available, and to organize that information with a view to accuracy and ease of use. I have made a special effort to accumulate links to as many first person accounts as possible, and to full-text versions of peer-reviewed professional journal articles available free-of-charge. Eventually I’ll incorporate abstracts and subscription-only material. No doubt the opinionated reader will find links to material he or she finds objectionable. So be it! As a student in library school many moons ago, I was encouraged by my most inspiring, most radical teachers to suspend personal ideology when selecting materials for public consumption, to trust the intelligence and judgment of the library patron, to let every voice be heard.
A resource for children with behavioral issues, their families and teachers from NICHCY with information and links on positive behavior management in the classroom, behavior issues and specific disabilities such as Autism and ADD/ADHD, and what the laws require. En Espanol.
Haidee Copeland, Ph.D
Debra Eisert, Ph.D
AUTISM HANGOUT is an online discussion forum that reports news, complies facts and community-submitted personal experiences and invites ongoing discussion to discover insights on how best to deal with the daily challenges of autism.
Autism training and resources for law enforcement, emergency first responders, parents, educators, care providers, and the autism community. Site offers a number of free downloads and handouts to improve the safety of individuals with autism including Autism Emergency Contact Form (PDF).