The UCEDD has been awarded two Research Topics of Interest (RTOIs) grants: Accessing Child Educational Services (ACES) and Benchmarks for Early Screening and Testing (BEST).The Association of University Centers on Disabilities (AUCD) funds RTOIs through a cooperative agreement with the Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD).
Accessing Child Educational Services (ACES)
Jane Squires, PhD, University of Oregon
Accessing Child Educational Services (ACES) proposes to investigate barriers, motivators, and other factors that influence parents or caregivers to act early on concerns that child developmental milestones are not being met. Successful strategies, motivators, and facilitating factors for parents/caregivers will be identified that encourage timely and early parent action. Four primary research questions will be investigated: 1) What is the effect of the child’s age at time of initial positive developmental screen on parental actions; 2) What are the characteristics of families associated with action or inaction related to acting early? 3) What are the environmental characteristics associated with action or inaction? 4) What are effective ways to support and encourage parents in information gathering and decision-making related to seeking consultation and evaluation of developmental delays? Qualitative and quantitative data will be gathered from caregivers and agency personnel working with families with young children, as well as individuals with disabilities. Recruitment of caregivers from diverse urban/rural, ethnic and socio-economic backgrounds will occur through child find settings currently used in Oregon for screening children as well as through agency-based screening and intervention/education settings (e.g., Early Intervention/Early Childhood Special Education, Head Start, primary health care, Oregon Council on Developmental Disabilities). Data collection will include surveys of caregivers and agency staff, interviews and focus groups with caregivers, agency personnel, and individuals with disabilities. The Early Intervention Program, University of Oregon Center for Excellence in Developmental Disabilities (UCEDD), will be the lead agency, led by Dr. Jane Squires, UCEDD Director and Early Intervention Professor and Dr. Debra Eisert, UCEDD Associate Director and Pediatric Psychologist.
Benchmarks for Early Screening and Testing (BEST)
Jane Squires, PhD, University of Oregon
Early intervention services for infants and toddlers improve developmental, mental health, and health outcomes for young children and their families. Currently, few states track the timeliness of services that young children and their families receive nor report on the responsiveness of their systems to individual and family needs. Project BEST proposes to investigate current early intervention reporting systems and develop reasonable benchmarks that will serve as key, standard components of state early intervention systems for screening, assessment and diagnosis. Research will be conducted in three phases. First, an environmental scan of selected state data systems measuring the number of children and the timing of screening, assessment, and diagnostic phases for early intervention services will be conducted. Second, benchmark measures for reporting numbers of children and implementation time frames will be developed. Finally, benchmarks will be pilot tested in two counties in Oregon that significantly vary in their current abilities to meet standards for identifying and serving young children.